Who are PWSA? Visit https://www.pwsa.co.uk/

  • A telephone, email and Facebook helpline for those in crisis or needing help, information, advice and support - or perhaps just someone who understand.

  • An information hub, providing everything you need to know about PWS in an accessible, engaging and relevant form, day workshops and a biannual National Conference.

  • The Familynet project, which provides a programme of regional family activities throughout the UK, offering peer support, opportunities to socialise within safe environments and enabling people with PWS to form life-long friendships with peers.

  • Training courses for professionals working with people with PWS to equip them with the skills to care for them appropriately, AIM accredited awards for carers from supported living and residential care, workshops and conferences.

  • Funding for and opportunities for people to take part in research to bring about an end to Prader-Willi Syndrome.

  • Bring families together for support

  • Family days out.

About Prader- Willi Sydrome.

You can find out from clicking above link about PWS.

Page but here is some information in my short version.

Hypotonia: weak muscle tone, and floppiness at birth. Hypogonadism: immature development of sexual organs and other sexual characteristics.

Obesity: caused by excessive appetite and overeating (hyperphagia), and a decreased calorific requirement owing to low energy expenditure levels. (Obesity is not normally a feature of those whose food intake is strictly controlled.)

Central nervous system and endocrine gland dysfunction: causing varying degrees of learning disability, short stature, hyperphagia, somnolence (excessive sleepiness), and poor emotional and social development.

Im hosting the ball to also raise awareness of this condition, PWS. You can purchase direct from this website and pay via paypal or contact me for BACs payment.

Email us for more information: karina.obrien@yahoo.co.uk

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